Welcome to the HS resource hub!
Living with hidradenitis suppurativa (HS) can be challenging, but you’re not alone. Our tips, tricks, and downloadable tools are designed to support you through every step of your HS journey. From how to have better conversations with your doctor, to myth-busting HS guides, you’ll find a wealth of information, developed with HS patients themselves, to help you manage your condition.*
In this handbook, you’ll find everything you need to know about HS. From common triggers and management options to the types of specialists involved in HS care, this one-stop shop includes everything you need to understand more about your condition and embrace life with confidence.
Separate fact from fiction with our myth-busting guide to what HS really is, and isn’t. The myths and misconceptions surrounding HS have been around for too long – it’s time we put them to rest.
We understand that your HS is unique to you, and your conversations should be too! Download this guide on your devices and fill it in as many times as needed. We hope you will find it useful to start having better conversations with your family, friends and doctor, ensuring your management plan is individual to you.
Many people with HS encounter a variety of medical experts from different specialities, usually dependent on what kind of symptoms they have. Find out more about the people that you may meet along the way.
Knowing how to manage your symptoms well can make a huge difference to your quality of life. From practical tips and tricks to strategies that help support your emotional well-being, find out how you can start implementing positive changes today.
*These materials have been co-created and endorsed by people living with HS, who are members of HS Patient Advocacy Groups (PAGs) and patient groups across different European countries. We would like to thank patient representatives of the following organisations: